Tuesday, June 22, 2010

Round 1, sucker punch 1..ahhhh...and 2

Wow. The past month has been a flash. It seems like each day a new adventure was unleashed. One that I was unsure of how to accept and certainly had no idea of how to address. The one thing that I held firm during each new experience, was that He has a plan. Albeit, sometimes I certainly said, "Are you sure about this plan?" And then it was confirmed each time, "Yes my child." So, onward we go. I am going to step back just to April 28th, 2010. We took Savannah for a more in depth hearing test. It is called an ABR test. She needed to be put under for this. If you want to learn more about this test, I attached a link to ABR TEST . The ENT we saw also suggested that during this test he would determine if she needed tubes or not. She did. Before they took her back, I really felt like the results would be something along the lines of this:
1. She needs tubes
2. She has some hearing loss, but the tubes will help correct that issue
3. Once the tubes are in and she gets some relief, her speech will develop.


Isn't it interesting how we can completely plan out a situation? How we can make it seem as thought it all make the best sense that this would be the outcome. Well, when they were done the doctor and audiologist came in. They spoke to us for about 30 minutes before we went back to see Savannah. This is what they said(or what I heard).

Doctor
"We decided to insert the tubes in both ears. There was some fluid, and this should correct the problems she seems to have with her ears draining. Second we were able to do the Sensory portion of the ABR test. I will let the audiologist explain that."

AUDIOLOGIST
"The results of the test showed that Savannah has moderate hearing loss in one ear and severe in the other. Of course we recommend hearing aides in not just for the server ear, but for the moderate ear. BLABLA BLABLA BLABLA BLABLA BLABLA BLABLA BLABLA

Basically after the hearing aids I felt like a quick sucker punch in the gut that I couldn't react to and just kept nodding my head yes and saying, "ok." I asked how long she will need aids, of course with a reply of her entire life. Sucker punch number 2. I started to react to that one, but kept it inside.

So, at that point the dr and audiologist left the room. We had about 1 minute for Fred and I to consider the words, the change in life, the challenge, the gift of what all of this could(and has) become. We went on to get Savannah and stayed with her until she woke up.


But now I back up..I will go back to 10 minutes before I walked in with Savannah for this appointment with the audiologist and doctor. In effort to help her gain her speech, we have been going to therapy since her 1st birthday. She has made some progress. We at least have "Mamamamama" as a primary sound! 2 times a week for 45 minutes. We have been very blessed to have 2 therapists that have been incredible with Savannah. And love on her so sweetly. But, I did feel like we needed more. The biggest problem you face in that is insurance. Insurance is a funny thing. It limits you while guarantying something for you. We only have a certain number of sessions allowed a year, until we have to pay not only a $45 copay, but the additional $115 per session that we would be billed. A few people recommended the Callier Center as a resource for therapy. I had called in the first part of the new year, and was told the wait list for the "Pre Verbal Program" was a bit long. Plus, at the time Savannah was not the right age. They take 18 months to 3 years for this program. They mentioned that we might get in the program in the fall, but most likely it would be spring of 2011.
So here I am. Walking into Savannah's appointment for the ABR test. And I get a phone call. It is the Callier Center saying they had a few openings for their summer program. They asked if we would be interested. Of course we would be. I did not think twice about the answer. I took the first appointment they had for an observation with Savannah. They said she would have her own therapist 4 days a week for 2.5 hours. There would also be other therapist around helping as well! They said they could bill to Aetna as well.
Are you kidding me? I thought well, this is good. It gives me options for Savannah.

So back to the recovery room. I looked at Fred and said, "Sometimes you don't have any idea what the next step is or how to figure it out. God laid this one out for us. We had no idea what we would be hit with today, but He did. And He provided the next step before we found out we needed it. The Callier Center is one of the number 1 places to be for speech and hearing loss."

So, it all made those 2 sucker punches a little less painful.
I still sit in awe of that. If I had not received that phone call, I would have not only been trying to process the facts alone, but trying to process what is the best next step for Savannah. And I didn't have to. He does provide!
Ok, I will post later about the blessings that have come to us and Savannah receiving her hearing aids. I must go to sleep so BooBoo and I can go to school in the morning!

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